ADHD

• CHADD (Children and Adults with Attention Deficit Disorders/Hperactivity)

• Asperger Syndrome

• Autism and Developmental Disabilities Service at JFK Partners

• Autism Society of Boulder County

• Autism Society of Colorado (ASC) provides information, support and advocacy for individuals with autism. *P2P Supporter

• Autism Society of Larimer County

• Autism Society of Pikes Peak Region

• Autism Key (run by parents) including Autism Friend Finder

• Dana's View from the Inside

• GFCF On A Budget

Cerebral Palsy

• Cerebral Palsy of Colorado

Chromosome Disorders

• The XXYY Project

• Chromosome Deletion Outreach - Education, information, advocacy and support for all those affected by any rare chromosome disorder.

•   The MIND Institute is a phenomenal resource for any who have children on the autism spectrum, Fragile X Syndrome or many other genetic disorders that include neurodevelopmental issues.

Cri du Chat Syndrome

• 5p- Syndrome - Parent support group for families having a child with 5p- Syndrome, also known as Cat Cry Syndrome or Cri du Chat Syndrome.

Dandy-Walker Syndrome

• Dandy-Walker Alliance

• CDE Deafblindness Page

• Recording for the Blind and Dyslexic - Rocky Mountain Unit

• The Nat'l Information Clearinghouse on Children who are Deaf-Blind

• Colorado Springs Down Syndrome Association

• Denver Down Syndrome Clinic

• Mile High Down Syndrome Association

• Down Syndrome Educational Trust

Duchenne Muscular Dystrophy

• Muscular Dystrophy Parent Project

Dyslexia

• Colorado Talking Book Library

• Recording for the Blind and Dyslexic - Rocky Mountain Unit

• Rocky Mountain Branch of International Dyslexia Association

Dyspraxia

• Dyspraxia, USA

Epilepsy

• Epilepsy Foundation of Colorado

Fragile X

• Developmental FX - Specializing in clinical services to families with Fragile X Syndrome and other neurodevelopmental disorders.

Hearing Impairments

•   Colorado Families  for Hands & Voices - Dedicated to providing support to families with children who are deaf or hard of hearing.

•  Communication development for baby's with hearing loss.

Holoprosencephaly

• Holoprosencephaly Resources Page

Infantile Scoliosis

• Infantile Scoliosis Outreach Program (ISOP)

• KS&A (Knowledge, Support & Action) - Outreach to individuals and their families with one or more extra X and/or Y chromosomes.
• Klinefelter Syndrome Support Group Home Page

Learning Disabilities

• Learning Disabilities Association of Colorado - Advocacy and education of learning disabled children and adults.

• National Center for Learning Disabilities

Lissencephaly

• The Lissencephaly Network

Mental Health

• Colorado Chapter of National Alliance for Mentally Ill - Advocacy on behalf of people/families with mental illness.

• Colorado Federation of Families for Children's Mental Health - Advocacy on behalf of children/families with mental health challenges.

• EMPOWER Colorado - Information, advocacy and support for families with children with mental health issues.

• Mental Health America of Colorado

•   S.T.E.P. UP 4 Kids - Support for parents of children and adolescents with early-onset bipolar spectrum disorder.

Non-Verbal Learning Disorder

• Non Verbal Learning Disorders Association

Parry Romberg Syndrome

• Parry Romberg Foundation

Prader-Willi Syndrome

• Prader-Willi Syndrome Association

Rare Diseases

• The Rare Disease Community

Rett Syndrome

• International Rett Syndrome Association

• Shaken Baby Syndrome

• The Sarah Jane Brain Project - An open access site dedicated to sharing specific information for ALL professionals and families interested internationally in shaken baby syndrome.

Smith-Lemli  Syndrome

• Smith-Lemli-Opitz/RSH Foundation

Spina Bifida

• Colorado Spina Bifida Association (CSBA)

Strokes

• Children's Hemiplegia and Stroke Association (CHASA) - Information and support for families of children who have hemiplegia and/or childhood stroke.

• Hemi-Kids - Information about online email support group for families of children who have hemiplegia or hemiplegic cerebral palsy or childhood stroke.

• Kids Have Strokes - Information on in utero stroke, perinatal stroke, prenatal stroke, infant stroke and childhood stroke.

Tourette Syndrome

• Tourette Syndrome Association Rocky Mountain Region
  2020 South Oneida Street, #19 Denver, CO 80224
  Phone: (303) 832-4166, E-mail: tsarmr@att.net

Tuberous Sclerosis

• Tuberous Sclerosis Alliance of the Rocky Mountain Region

• VACTERL Network - Local contact, Josie, can be reached at denvervatersupgrp@yahoo.com.

• The Williams Syndrome Association